tag:blogger.com,1999:blog-18714027.post6961724292115732454..comments2009-02-19T21:55:30.835-08:00disturbedmehttp://www.blogger.com/profile/02455473074756560762noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-18714027.post-35728392187578987902009-02-19T21:55:00.000-08:002009-02-19T21:55:00.000-08:00Wow! Your central nervous system symptoms are exactly like mine! I went undiagnosed for three years with excruciating 8, 9 or 10/10 pain and nobody could figure it out. Then I got bells palsy, vertigo, extreme nausea and vomiting with the head pain, ugh, and on and on and on. I have three peripheral nerve stimulators to help handle the pain. <BR/><BR/>I'm seeing a lyme specialist, and he diagnosed me with lyme encephalitis, basically a really really bad swollen brain due to a tick bite in 2003 while camping with my family. <BR/><BR/>I am now getting another stimulator implanted to hit my trigeminal nerves in my face. It's so intense. I take IV dilaudid every two hours just to keep the pain a little under control.<BR/><BR/>Contact me any time to discuss, but wow, how amazing!<BR/><BR/>JennJenniferhttp://www.blogger.com/profile/18022449718405363794noreply@blogger.comtag:blogger.com,1999:blog-18714027.post-83761415911886113992008-07-03T16:55:00.000-07:002008-07-03T16:55:00.000-07:00Kimberly, yes you can definitely use my story.<BR/><BR/>I am sorry to hear that you have to go through this as well. *hugs*<BR/><BR/>~AshleyAshleyhttp://www.blogger.com/profile/02455473074756560762noreply@blogger.comtag:blogger.com,1999:blog-18714027.post-24480261293742700622008-05-30T10:01:00.000-07:002008-05-30T10:01:00.000-07:00I am so sorry you are going thru all this. Just know youa re not alone. There are many of us Lymies out there going thru similar situations. I am a mother and wife adn at this point, in a wheel chair. I go back to my LLMD next week and am hopng for miracles.<BR/>I wondered if I might share your story on my website with a link back to your blog. It is interesting to see/hear others stories. Many poeple think we should be "cured" way before now and to hear other voices saying this is not the case lends credence to our plight. <BR/><BR/>Lord bless, <BR/>Sister Kimberlybelieverinjesushttp://www.blogger.com/profile/14629520882122898464noreply@blogger.comtag:blogger.com,1999:blog-18714027.post-52281935874608962122008-04-09T14:45:00.000-07:002008-04-09T14:45:00.000-07:00I don't think I'd seen that particular symptom list before. I got a 48 on that one. Still scared I'm imagining things, though.Chrishttp://www.blogger.com/profile/00751886816614224670noreply@blogger.comtag:blogger.com,1999:blog-18714027.post-78736588615934002512008-01-25T09:07:00.000-08:002008-01-25T09:07:00.000-08:00I understand completely hun... Mary LLRNMaryhttp://www.blogger.com/profile/09438593341386024158noreply@blogger.comtag:blogger.com,1999:blog-18714027.post-14173215706479022862008-01-10T18:44:00.000-08:002008-01-10T18:44:00.000-08:00Your story sounds all too familiar. Good luck with your recovery and I'm happy to read you have a LLMD. They're rare!Tragicomedyhttp://www.blogger.com/profile/10908707711286823216noreply@blogger.com